I am completely frustrated. My sister in law, no wait I have to go back further. My husband's sister is around 34 years old. She suffers from baby shacking syndrome. When she was a baby her father didn't want to pay child support so he decided to get rid of her. He didn't succeed in killing her thank the gods but he made her life hell. She has the abilities of around a 13-14 year old; can't handle stressful situations, has seizures, and many other problems. She has known for quite some time that she will never be able to function on her own, able to marry, have a family, or a normal life. She has dealt with this as best she can. A few years ago while living in Hooks Texas she was having problems with her ovaries where sics were popping and where causing a problem; the doctors up in Hooks wouldn't do anything about it because the only course of action was to take all her parts out and because of her age they wouldn't do it. So they continued to burst and her bladder sat in that causing an infection.
  We finally got her down her because her bladder started to shut down with the infection. They finally did the surgery but the damage had already been done. She has slowly been going down hill from there.
  The latest news is that several of her organs are shutting down she is on a catheter and will be for the rest of her life. She has constant infections from the bladder which have worked their way into the liver and now the lungs. She is on several pain medications and antibiotics.
  Last week she was in the hospital and my other sister in law by marriage was sitting up at the hospital with Melissa so Dave's mother could go to the house and get a shower. A nurse came in and while she was giving medication to Melissa started to berate her for taking so much medication and that she couldn't be in so much pain nor need so many antibiotics. That people live with catheter and only have to have them changed every six months, she shouldn't have to have them changed every 3 to 4 months nor go under to have it done. That she was a druggy and only there for the pills. I feel number one if I had been there I would have told her off taken her name and told the head of nursing at the hospital. You should never talk to some one that way. I also feel she never looked at Melissa's chart and was spouting off because she could. You should never talk to an impaired person that way and you can tell Melissa is an impaired person. She is 34 and wears children's clothing, her facial features are those features with impaired. She is also clearly not well she is losing weight because of the pain and medication she has no want for food, yet her tummy is distended like a ball. Well this nurse got my other sister in law started thinking and telling Melissa that yes she shouldn't be on this kind of medication. I wonder where and when she got her medical degree but I digress.
  The next time I see her I want ask her how she would handle this situation because this is what Melissa is going through.
1) You aren't normal, you will watch your family have normal lives. Get married, go off to school, and off US soil, have children, run business.
2) You will never have children
3) You will have to live the rest of your very short life in and out of hospitals for tests, surgery. Have a catheter, be in constant pain.
4) Have seizures so bad sometimes that you will fall out of bed and hit your head causing a concussion. have another and hit the wall with your arm till it breaks.
5) Then you are told you have around 6 months to live. write your will, get your finances in order, and decide if you want the hospital personal to restart your heart if it stops.
How would you react? I don't know what I would do. But I hope I could have the dignity my sister in law Melissa has and the strength to continue through it all.
Why if you know all this would you tell her the things she did? It just takes five seconds to think before you say something that could upset Melissa. We don't have her that long, lets make her comfortable and love her the best we know how.

Well I am trying to use as little electric and gas as possible I try to drive only once a day and do everything at that time. I am also waiting to turn on my air conditioners until hopefully the 2nd week in June. Why the 2nd week in June because after attending A-Kon I get spoiled staying in a hotel room for 4 or 5 days.
  Every thing is so busy. The time I would normally write has been taken up with plaining the Summer Solstice camping event. My fellow Priest of OHOC reminded me last night about the Halloween Party I then reminded him about the OHOC Pagan Pride day event as well. So October and November will be full for me as well.  So we are worrying about things in this order; Summer Solstice, Halloween Party, and then Pagan Pride Day.
  The new book will first become a short story and I am going to try and send it to some fiction magazines.
  Well last night was so bad my sister-in-law is in the hospital for breathing problems so I went and sat with her last night up till around 1 in the morning. Then came home and crashed. Tonight is Dark Moon and there will be no telling when I will get home.
  Wow it sounds like I have nothing good to talk about dose it. Well there is I have great friends, a hubby that loves me, the ability to help others. It can't be that bad.